Showing posts with label "Invisible Disability". Show all posts
Showing posts with label "Invisible Disability". Show all posts

Wednesday, February 29, 2012

Thursday's Therapy - It's Not Just About Losing Your Child ~ It's Also Very Much About Coping with a Traumatized Self and Your Inability to Function





Thursday's Therapy


It's Not Just About Losing Your Child ~

It's Also Very Much About Coping with a Traumatized Self and Your Inability to Function





People hear the words "Child-Loss Grief" and think that such grief is just about losing and missing your child. Well, losing and missing your child is indeed a large enough component to knock us off our feet for a long, long time. But what people DON'T GET is that Child-Loss Grief is also about TRAUMA and what that does to minds, bodies, and psyche's that ALSO turns us upside down and changes our lives forever.



In our observations and own experience, we find that after about two years of contending with child-loss, the wear-and-tear that the stress hormones (e.g., cortisol, epinephrine, and norepinephrine) have had on your body and psyche sets you up for Post-Traumatic Stress, which compounds your ability to walk through your grief, adding a traumatized self to the mix.


For example, over time, you will find that any prior unresolved trauma issues, prior attachment issues (e.g., fears of abandonment, etc.), and prior resolved trauma issues even can get retriggered, or even triggered for the first time. And because our brains have been damaged through being traumatized, we are essentially stuck many times in the fight-flight-or-freeze state which emanates from the part of the brain that is primitive, and provides only for our self-protection which will override logic and reasoning because it perceives that there is an imminent threat for the body to prepare for. Then we find ourselves in such a reactionary mode to where sometimes even we don't recognize ourselves.


Child-Loss Trauma then throws us into a domino-effect of losses upon losses that complicate our lives to the point of feeling almost, if not completely, dysfunctional.

Some of the Components of Child-Loss Trauma are as follows:




Physically


Look at what happens physiologically to the brain from the severe trauma of losing our child. Such trauma essentially results in literal brain damage, as they can now measure through neuroimaging (if they have a "before" and "after" scan) how the hippocampus of the brain (which controls memory) even shrinks.


  • Memory is impaired. Our procedural memory (habits or procedures we normally do such as grooming, brushing teeth, locking doors, how we get to stores to run errands, how we find our cars in the parking lots once we're done shopping, etc.) is impaired so that we find our daily functioning is greatly impaired. Thus it feels like we are trudging through molasses to do something we used to do without even thinking about it.
  • Concentration is impaired. We may be unable to watch a movie or read a book for awhile once our child is gone. Another child of ours may tell us some important detail in their lives, and we may not register what they say even though we heard them say it.
  • Judgment is impaired.
  • Hypervigilance occurs.
  • Hyperstartle response occurs.
  • Hyperarousal occurs (where we stay in a startle-state mode).
  • Neural pathways that were there before the death of our child have been disrupted and thus you must help your brain find new ways to re-route critical information to the different parts of the brain (such as the medial pre-frontal cortex) to be reprocessed and resolved. In effect, you are stuck in fight-flight-or -freeze state until you can help your brain move that sensory data or information to the appropriate places in the brain for it to be processed and resolved.



Emotionally


  • Besides missing our child, we have lost the future with our child.
  • We have lost the family "nest" of the intact-family-unit we always had, and thought we always would have.
  • We have lost the celebrations of birthdays, holidays, and other family or community rituals that brought us much happiness.
  • Relationships with others whether friends, church members, or even family members are often lost as the chasm between us widens when they cannot understand, respect, or appreciate the devastation that comes with our immense loss.



Mentally


  • We have lost many assumptive beliefs, such as the belief that the world is a predictable place.
  • We have lost the assumptive belief that the world is a safe place.
  • We have lost a sense of security.
  • We must now live through the rest of our lives knowing with a surety that death can happen to anyone we love in just a moment's time.



Spiritually


  • Many of us have lost trust in God who did not protect us or our child at a critical time in our lives.
  • Most of us have to re-examine our faith to embrace the truths, and throw out the falsehoods that inadvertently crept in and tainted our view of God.
  • Many have difficulty returning to places of worship when there are so many volatile emotions, or confused feelings about God, or angst over trite sayings that wound instead of comfort.
  • Some of us have experienced abandonment from the very people we would have thought would stick by us through thick-and-thin because of their purported life-values, which leads to painful secondary injuries we must add on to our traumatic grief to work through and heal from.



Career-wise


  • We may find that we cannot automatically perform the very work we had done all our adult-lives before our child's death.
  • We may find we have lost the confidence we once had to perform our job.
  • We may find we do not have the emotional stamina to do the work we once did.
  • We may find that we have a fatalistic attitude that impairs us doing our work, e.g., if we couldn't keep our child from danger who was the center of our attention, why should we think we will have success with anything else?
  • We may find that we are impaired in our work due to emotional triggering that interferes with our functioning normally.



Medically


  • Immune systems can become compromised.
  • Our bodies can succumb to diseases they once easily fought off, e.g. diseases such as cancer, high blood pressure, heart disease, and diabetes.
  • There is a much higher incidence of developing addictions or of triggering old addictions to illegal substances, alcohol, prescription medicines, sex, eating disorders, etc.
  • There is a much higher incidence of being accident prone.
  • There is a high incidence of insomnia and/or nightmares.



We find that we are not only left in this life to grieve our child, but it's almost as if everything is up for grabs, and there is a need for redefining everything including self, others, and God. So Child-Loss Grief is not just about losing our child; it is also very much about coping with a traumatized self and an inability to function.







Friday, February 17, 2012

Saturday's Sayings - Grief Takes As Long As It Takes






Saturday's Sayings

Grief Takes As Long As It Takes







Grief is the human process we will all experience.


You do have a choice in how you handle your grief. Know that it is not a race, you need to find your own pace.


Grief comes in waves, from very intense to manageable we just ride the wave.


Anger, rage, fear, dread and guilt may pay us a visit. It's okay, we must feel those feelings as much as it may hurt. It is a normal way your body will process the grief. So this is a reminder to not prevent yourself from these feelings but to be compassionate with yourself - reach out for support, let yourself be nurtured.



~Grieving Mothers


*****



Love is a gift. It makes you feel richer, deeper, and brighter. When a loved one is gone, taken, it feels like the gift is gone. Remember that you are a different person because of their love. You would be another you if their soul hadn't graced your life. Although you long for their physical form, remember that the gift -- their love -- remains with you now and forever.


~Grieving Mothers



*****





*****




This photo from another friend "spoke" to me. I feel she, like me, is lost sometimes. That she is afraid to speak her mind...out of fear, confusion or just her grief. Will she be comforted when she speaks or told to "grow up and get over it." Will her words be truthful or what others are expecting to hear? The person inside her heart is always with her. Pushing her forward...yet holding her back. Her eyes are peacefully closed as memories of the past and lost hopes for the future keep her bound and unable to freely move in her present.


~Writing Through Your Grief



*****


A broken heart is like broken ribs. You can't see the damage, but every breath hurts.


~L.D.P., a grieving mother



*****






*****






Losing someone you love is painful. On that very moment you hear the news, your life is forever changed. Dealing with the physical and emotional loss leaves (you) feeling (you) are the only one in the world who is experiencing this much sadness. Following the death of my son, I retreated inward. Scared from the feelings I was having inside, I thought if I spoke with anyone about my emotions they would think I was crazy.


For probably the first year or so I was afraid of the world. I kept my other kids close and made very few friends out of fear they could not be trusted. I decided I would keep my pain inside and "deal with it"


...That is until I attended a conference for grieving people.


Listening to the other men and women sharing their stories I found myself saying "I thought I was the only one who felt that way". Sharing my story made it easier to bare, hearing others say what helped with their grief, help(ed) me with mine. I came to believe I had found my "Kindred Spirits." In an informal way, this term has come to mean someone you feel a connection with, or someone who understands you. These new friends seemed to share my goals of getting through every day and finding a way to keep the memory of my son alive.


The Urban Dictionary describes Kindred Spirits as "people that make a special connection by sharing a bond that has joined them by the means of an experience that has drawn them together on a higher level of consciousness. This connection can be from the same experience at the same time or two separate experiences similar in nature."


Working as a counselor for my local hospice I have seen the benefit of support groups: Seeing strangers meet on the first night and watching the(m) share, cry, grow and leave the group exchanging phone numbers or email addresses with a new friend who understands what you are going through.


Retreats come in all forms including some that promise to pamper the body, but Grieving in Plain Sight is designed to not only pamper your body, but to pamper your heart and mind as well. The companionship, the stories, the tips and suggestions learned will help those grieving no matter how long it has been. The phrase "you can't take care of others until you take care of yourself" has never been more appropriate than when it comes to calming the emotions of grief in your heart. Talking with others has helped me and if you attend a retreat it may help you too.


~Writing Through Your Grief


*****



Never compare your journey with someone else's. Someone else may start out faster than you, may seem to progress more quickly than you, but your journey is your journey. Its not a competition.


~Writing Through Your Grief



*****












Monday, November 8, 2010

Tuesday's Trust - The Fifteen Per Cent Factor





Tuesday's Trust


The Fifteen Per Cent Factor





(My computer just got zapped tonight. Bummer. Right now, I am borrowing my son's computer to do Tuesday's post. I would greatly appreciate your prayers ~ I am hoping it is "fixable" and/or at least that I can save all my documents.)




In Waking the Tiger, (the number 1 book on amazon.com for Post-Traumatic Stress Disorder), it took trauma therapist/author Peter Levine only 6 sentences before he said in his prologue,



"IN TRAUMA, WE KNOW THAT THE MIND BECOMES PROFOUNDLY ALTERED."




(highlights, mine)



This fact is one that we child-loss grievers know experientially, but that those around us don't seem to understand at all.


The trauma of losing a child has many ramifications. We know that the brain is impacted. Just one of the ways we grieving parents have been impacted by this impairment phenomenon is:



It takes twice as long to do anything; we cannot be hurried.




I just read an essay by Stephen Marsh, an attorney and a grieving father of three of his four daughters each dying separately and unexpectedly, within a span of four years. Stephen says in his essay, "Surviving Loss" about what the grieving parent goes through in child-loss:




"Most parents who have lost a child operate at about 10 (per cent) to 15 of their normal capacity for at least six months.


Suggesting that the person "do more" when they can actually do 85% less is insisting that the person do things that gratify the demander -- often at the expense of whatever energy the person has to care for their family and remaining loved ones."





Tommy and I would add, we don't think this incapacity lasts for just six months. Four years after losing our precious daughter, we feel we are still functioning at about 10-15% capacity, wondering where the other 85-90% went, and if it ever will return.



Two examples from our lives happened just today. These examples give a good clue of how fiercely our lives have been impacted by this seemingly irreparable trauma of child-loss:



Tommy has always loved music, and has played in different bands (as an avocation) since he was 14-years-old. A former band member (from a band that was playing together just before Merry Katherine was killed), called Tommy up today and asked him to rejoin the fellow band members who had all gone their separate ways since those days, and play a gig for a professional gathering he is planning. Tommy declined, and later told me,



"My heart is just not in it anymore."


The band member reluctantly accepted his answer and said,



"You are just too good to never play again!"





As for me...


In a surge of energy today, I went with Tommy to the grocery store and bought some ingredients to cook one of (my middle child) Nathan's favorite dishes. When I went downstairs to call him up for supper and told him what I had cooked, he smiled delightedly, and said,



"When did you decide to be a mother again?"



Wow. How telling....






I am sure each of you grieving parents has an example or two similar to this in your life. We would love to hear how you are doing and what kind of impact your grief is having on you.




Despite our incredible disability that we are doing our best to navigate through, it is my strong hope that I understand God's Word correctly that



"He who started a good work in you will be faithful to complete it."


~Philippians 1:6




because at this rate, I cannot even fathom how, humanly-speaking, I ever will be able to complete much of anything in my own strength...




The beauty of using my son Nathan's computer tonight is that Nathan made himself available to help me pick out a picture for tonight's post, and introduced us to the following video, keeping up the great characteristic of our families in retaining a good sense of humor in the midst of even the most tragic of situations... {Thank you Nathan! :0) }
















essay by Stephen Marsh: http://www.adrr.com/living/sloss.htm

picture of "li'l brudder": thanks to photobucket.com

Waking the Tiger : Healing Trauma : The Innate Capacity to Transform Overwhelming Experiences, by Peter Levine, Amazon's #1 rated PTSD book: http://amzn.to/ddMCMx

"li'l brudder" video: http://www.youtube.com/watch?v=TGYzwf-sA0Y thanks to the suggestion of my son Nathan


Wednesday, September 29, 2010

Thursday's Therapy - Damaged






Thursday's Therapy


Damaged



~Tommy and Angie Prince






"Central to the experience of traumatic stress are the dimensions of


  • helplessness
  • powerlessness, and
  • a threat to one's life.


"Trauma attacks the individual's sense of self and predictability of the world."


~Bessel A. van der Kolk




We are impacted on so many dimensions by our Grief and our Trauma:


  • body
  • soul
  • spirit
  • mind
  • emotions




*****




I am a damaged person. Yes, I can function through a day (well, it may not be pretty, neat, or as organized as someone else's functioning, but it is functioning). I can walk, I can talk, I can think, I can smile, I can even laugh. I can relate in many different ways. And yes, I can work. I still have a practice in psychotherapy which I love. I love helping people. But my case load is not up to par -- it is about 1/3 of what it once was.


One of my clients is a creative designer in advertising. He had seen me a few years back, and he has now re-entered therapy. I believe he must sense I am different. (He knows we lost Merry Katherine.) The other day, he asked me if I had enough business coming in. Why he asked this I'm not sure, but creating business is his line of work after all. But I stopped and thought about it. My studied response was



"I have as much business as I can handle right now."



Fortunately, he seemed okay with my response.




But you all know:


Losing a child is downright debilitating. I am a different person now. My life has been damaged. I spend a great deal of time grieving. In terms of working and knowing what I am capable of handling, I do not even know who I am anymore! My system has been ripped up. I am hyper-vigilant. I am fragile, for my system, my entire being, is compromised. For the past month, I have been unable to sleep through the night like I did before. I am agitated. My body is hyper-aroused as if ready for danger.


Many psychologists say PTSD includes avoiding triggers that remind one of the trauma. I cannot relate to that symptom really.


I do not avoid triggers that remind me of the loss of my child -- I welcome them and cry over them. They remind me of my child, and in their own way serve as my only way of "being with" my child right now. And so I feel them to the full and work to grieve them.


But I do avoid something else.


Secondary Trauma is what I avoid because my Primary Trauma of Losing My Baby Girl is ALL I can deal with right now.


I do not need any complications of further trauma to my heart.


What is one of the secondary traumas that I face?


Unrealistic Expectations: We child-loss grievers are experiencing a damage that the world is not willing to accept, especially the Christians it seems --


There is a pressured expectation of a rush to heal, a sprint, a drag-race expectation really, to heal, be-done, fini, instantly recover.


This expectation alone is harmful, so misguided, and in many ways downright cruel.



There are indeed benefits to this Refining of Fire through which we are going. We find we do not have the "layers of stupid" on us any more. We are no longer walking through the world looking through the lenses of Idealism nor Romanticism. We relate to people -- not for how we want them to be, as we once did... I used to assume people were there for me. I was assuming they cared for me and that they had my best interests at heart -- but now we try to see them for who they really are... We no longer just assume such sweetness to be there.


Now, thanks to our increased vigilance and God's sweet discernment, we have a Clarity we did not have before about the world and about people. For example, we can very quickly sniff out if other people have their own self-serving agendas for us, despite our being in very raw grief.


How dare anyone have their own self-serving agenda for us when we are Under Assault, Under Siege in this ongoing Grief-and-Trauma-War we are having to fight in every single dimension of our lives: body, soul, mind, spirit, and emotions.


We therefore expose ourselves to these people in a different way, in a much more protected way.



For WE CANNOT AFFORD TO ADD SECONDARY TRAUMAS TO OUR PRIMARY TRAUMA.




Dr. Bessel A. van der Kolk, a psychiatrist specializing in trauma (even helping to coin the term Post-Traumatic-Stress-Disorder), says about PTSD and traumatic event(s)' effect on our being:


"It is this Sense of Being Damaged, rather than the immediate horror of the Trauma, that many victims describe as the worst aspect of their ordeal in the long term."




~Dr. Bessel A. van der Kolk

(capitalizations and highlights mine)




This is a very important statement. This sense of being damaged IS overwhelming. Some even call it an "Invisible Disability."



NOW, ADD to Severe Trauma the absolute Worst Grief in the world--that of losing your child!


Losing our child is the worst thing that could happen, but it did happen, and our child's death and the inherent loss of her life here with us while we're on earth is the worst aspect of our ordeal. And while trying to grapple with such great hurt and loss, we have the debilitating damage to all dimensions of our very being brought on by the trauma, and you've got one sick puppy -- who needs to do Grief work, Trauma work, and oh-yeah-by-the-way, carry on with your job and your life and pay all your bills, all the while trying to avoid any secondary traumas on top of all this.




It all feels well nigh impossible...












Picture: http://www.fotosearch.com/photos-images/heart-arrow_3.html

Traumatic Stress: The Effects of Overwhelming Experience on Mind, Body, and Society, Dr. Bessel A. van der Kolk, Alexander C. McFarlane, and Lars Weisaeth, Editors, pp. 136, 137 and 215.